Genomic Data-Sharing Practices
نویسندگان
چکیده
منابع مشابه
From the principles of genomic data sharing to the practices of data access committees
Sharing genomic research data through controlled-access databases has increased in recent years. Policymakers and funding organizations endorse genomic data sharing in order to optimize the use of public funds and to increase the statistical power of databases. Well-established data access arrangements and data access committees (DACs)-responsible for reviewing and managing requests for access ...
متن کاملGenomic medicine and data sharing
Introduction Effective data sharing does not occur in the UK despite being essential for the delivery of high-quality genomic services to patients across clinical specialities and to optimize advances in genomic medicine. Sources of data Original papers, reviews, guidelines, policy papers and web-resources. Areas of agreement Data sharing for genomic medicine requires appropriate infrastruc...
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BACKGROUND Scientific research in the 21st century is more data intensive and collaborative than in the past. It is important to study the data practices of researchers--data accessibility, discovery, re-use, preservation and, particularly, data sharing. Data sharing is a valuable part of the scientific method allowing for verification of results and extending research from prior results. MET...
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The human genetics community needs robust protocols that enable secure sharing of genomic data from participants in genetic research. Beacons are web servers that answer allele-presence queries--such as "Do you have a genome that has a specific nucleotide (e.g., A) at a specific genomic position (e.g., position 11,272 on chromosome 1)?"--with either "yes" or "no." Here, we show that individuals...
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Elsevier Publishing is pleased to announce the launch of Genomics Data, an open access journal that considers articles on all aspects of genome-scale analysis. Over the past 20 years, genomics technology evolutions have drastically transformed biomedical researches. Powerful genomics tools have enabled whole-genome gene expression analysis, genotyping of millions of genetic markers in hundreds ...
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ژورنال
عنوان ژورنال: Journal of Law, Medicine & Ethics
سال: 2019
ISSN: 1073-1105,1748-720X
DOI: 10.1177/1073110519840482